Resources relevant to Palliative Care and COVID-19
The International Association for Hospice and Palliative Care (IAHPC) has compiled this list of resources relevant to palliative care and COVID-19 published by academia, civil society organizations, member states and special agencies of the United Nations, with links to all of the websites and documents listed.
Compiled Briefing Notes with Introduction
#
Webinar Date
Webinar
Slides
Corresponding Briefing Note(s)
1
April 17
The impact of COVID-19 on palliative care and health systems and Issues specific to Low- and Middle-Income Countries: Resources, Cultural and Social issues The impact of COVID-19 on palliative care and health systems (slides) How Pandemics Affect Health Systems and Resource Allocation: Impact for Palliative Care Response to the COVID-19 Pandemic for Low and Middle-Income Countries
2
April 24
Access to palliative care during the COVID-19 pandemic: Ethical and Legal aspects Access to palliative care during the COVID-19 pandemic: Ethical and Legal aspects (slides) The COVID-19 Pandemic: Palliative Care and Human Rights Bio-ethical Principles, Practices and Recommendations Relevant to the COVID-19 Global Availability of Internationally Controlled Essential Medicines
3
May 1
Clinical and Prevention Aspects in Covid-19. Palliative Care for patients with cancer in LMICs during Covid-19 Clinical and Prevention Aspects in Covid-19 (slides) Recommendations for Symptom Control of Patients with COVID-19 Palliative Care for Patients with Cancer in Lower-and Middle-Income Countries
4
May 8
Holistic Care of Children, Symptom Control in Children with covid-19, Psychological and spiritual issues/needs and Voice of a mother Holistic Care of Children, Symptom Control (slides) Caring for Children with Underlying Serious Health Conditions During COVID-19 Pandemic Psychological and Spiritual Impact of COVID-19 on Children with Palliative Care Needs Symptom Control at the End of Life in Children with COVID-19 Infection The Social Impact of COVID-19 on Children with Palliative Care Needs and their Families
5
May 15
Suffering Alone & Grief/Bereavement Suffering Alone & Grief/Bereavement (slides) The Suffering of Isolated Patients and Families. The psychological and social implications of physical isolation for patients and families during the coronavirus pandemic. Grief and Bereavement for Family Members who Can't Visit their Sick Relatives or Attend Funeral Services
6
May 21
Palliative Care for Older People in the Context of Covid-19 Palliative Care for Older People in the Context of Covid-19 (slides) Palliative Care for Older Persons infected with COVID-19
7
May 28
How People with Pre-Existing Palliative Care Needs are Affected by the COVID-19 Pandemic How People with Pre-Existing Palliative Care Needs are Affected by the COVID-19 Pandemic (slides) How People with Pre-Existing Palliative Care Needs are Affected by the COVID-19 Pandemic
8
June 4
Palliative Care in Covid-19 for Persons with Disabilities and in Humanitarian Crises Palliative Care in Covid-19 for Persons with Disabilities and in Humanitarian Crises (slides) Palliative Care in Refugee Camps and Humanitarian Crises Meeting the Palliative Care needs of People with Physical and Intellectual Disabilities
9
June 11
Inter-Professional Spiritual Care and Self Care Inter-Professional Spiritual Care and Self Care (slides) Interprofessional Spiritual Care in the Time of COVID-19 Self-Care for Caregivers during the Covid-19 Pandemic
10
June 18
The Role of Telemedicine in Delivering Palliative Care during the Covid-19 Pandemic The Role of Telemedicine in Delivering Palliative Care during the Covid-19 Pandemic (slides) The role of tele-medicine: Remote access to patients, caregivers and health workers
11
June 25
Valuing and Strengthening Palliative Nursing in the Time of COVID-19 Valuing and Strengthening Palliative Nursing in the Time of COVID-19 (slides ) “Leaving No One Behind”: Valuing & Strengthening Palliative Nursing in the time of COVID-19
12
July 2
Advocating for Integration of Palliative Care into National COVID-19 Responses Advocating for Integration of Palliative Care into National COVID-19 Responses (slides) Advocating for Integration of Palliative Care into National COVID-19 Responses: Challenges and Successes
13
July 9
Persons experiencing homelessness, Detainees, and LBGT+ People Persons experiencing homelessness, Detainees, and LBGT+ People (slides) Palliative Care for LGBT+ People in the Time of COVID-19 Vulnerable Populations in Covid-19: Palliative Care for Detainees in Custodial Settings Palliative Care for those Experiencing Homelessness in the Time of COVID-19
14
July 16
Risks, Challenges, and Opportunities for Fundraising during the Pandemic. Closing remarks - Global Palliative Care and COVID -19 Series Risks, Challenges, and Opportunities for Fundraising during the Pandemic (slides) Briefing Note coming soon.
AAHPM (USA) - Resources to Address Coronavirus Disease 2019 (COVID-19) ACC Paliativos (Colombia) - Recomendaciones de la Asociación Colombiana de Cuidados Paliativos para la Atención Clínica de Pacientes Durante la Pandemia por SARS COV-2 /COVID-19. ALCP - Comisión de Trabajo Social. Guía de Orientación para el abordaje familiar en tiempos de Pandemia (in Spanish) AMA (USA) - Caring for our caregivers during COVID-19 Academia Nacional de Cuidados Paliativos (Brazil) -COVID-19 (in Portuguese) African Palliative Care Association(APCA) (Uganda) - COVID-19 Resources from Across Africa APM (UK) - COVID-19 Asia Pacific Hospice Network - COVID-19 Resources ASCO (USA) -Coronavirus Resources ASOCUPAC (Colombia) - Herramientas de cuidado paliativo, en tiempos de COVID-19, para no paliativistas CAEP Palliative Care Committee (Canada) - End-of-life care in the Emergency Department for the patient imminently dying of a highly transmissible acute respiratory infection (such as COVID-19) Canadian Medical Association - COVID-19 & Pandemic Palliative Care Canadian Paediatric Society - COVID-19 information and resources for paediatricians CAPC (USA) - COVID-19 Response Resources and Learning Training California State University (USA) - The Role of Palliative Care in a COVID-19 Pandemic Cairdeas International Palliative Care Trust (UK) - Cairdeas International Palliative Care Trust - Resources Center for the Study of Traumatic Stress (USA) - Sustaining the Well-Being of Healthcare Personnel during Coronavirus and other Infectious Disease Outbreaks Centre for Evidence Based Medicine / University of Oxford (UK) - Oxford COVID-19 Evidence Service CoronaBegleitung (German) - Guide to virtual and digital accompaniment of the dying by relatives and relatives during the corona pandemic (German version) Czech Society of Palliative Medicine (CSPM) - Clinical Recommendations for Palliative Therapy and Care for COVID-19 Patients Don't Forget the Bubbles (UK) - An Evidence Summary of Paediatric COVID-19 Literature EAPC - Resource List Coronavirus and the palliative care response EAPC - From the front line: Palliative care in Bologna during the COVID-19 crisis, eHospice - Free COVID-19 Shared Decision-Making Tool eHospice - Managing breathlessness in Covid-19 e-LfH Hub (UK) - COVID-19 Learning for The Health and Care Workforce ELNEC (USA) - End-of-Life Nursing Education Consortium: ELNEC Support for Nurses During COVID-19 Equity in Palliative Approaches to Care(ePAC) (Canada) - COVID-19: Equity-Informed Palliative Care & Social Disadvantage ESMO (Switzerland) - Introduction to the ESMO COVID-19 Palliative Care Pathways German Association for Palliative Medicine (Deutsche Gesellschaft für Palliativmedizin, DGP) and German Association of Pneumonology (DeutscheGesellschaft für Pneumologie und Beatmungsmedizin, DGP e.V.) Recommendations for treatment of patients with COVID-19 from the palliative care perspective V2.0 Hastings Center (USA) - Access to Therapeutic and Palliative Drugs in the Context of Covid-19: Justice and the Relief of Suffering Hastings Center (USA) - Ethical Framework for Health Care Institutions and Guidelines for Institutional Ethics Services Responding to the Novel Coronavirus Pandemic Managing Uncertainty, Safeguarding Communities, Guiding Practice Hastings Center (USA) - Responding to Covid-19 as a Regional Public Health Challenge: Preliminary Guidelines for Regional Collaboration Involving Hospitals Health[e]Foundation ( The Netherlands) - Corona[e]Education HHE (Canada) - HHE COVID-19 Resources Hospice New Zealand - COVID-19 for health professionals Hospice UK - Covid updates HospiceUK IAHPC, ICPCN, PalCHASE, WHPCA - Palliative Care and Covid-19 Series - Briefing Notes Compilation 2020. (New )IAHPC Pallipedia (USA) - COVID-19: Palliative Care ICPCN - Coronavirus and Children’s Palliative Care International Federation on Ageing - COVID-19 Resource Library International Pulmonologist's - Consensus on COVID-19 Instituto Borja de Bioética (Spain) - Recursos éticos sobre el COVID-19 (in Spanish) InSight+ (Australian Medical Association) - Integrating palliative care into COVID-19 planning National Institute for Health and Care Excellence -NICE (UK) - COVID-19 rapid guideline: managing symptoms (including at the end of life) in the community NHPCO (USA)- COVID-19 Information and Resources Ontario Medical Association -OMA(Canada) - A Remedy for Canada’s Drug Shortage Dilemma: Opportunities and Recommendations Oxford Medicine Online (UK) - A Field Manual for Palliative Care in Humanitarian Crises (New ) PalCHASE - University of Cambridge Palliative care in the time of the Coronavirus Pallimed (USA) - Palliative Care and COVID-19 Pallium (Argentina) - Recomendaciones de atención de pacientes durante crisis CRISIS COVID-19 Pallium (India) - e-Book on Palliative Care Guidelines for COVID-19 Pandemic Pallium (India) - Palliative Care in COVID-19 Resource Toolkit for Low and Middle Income Countries Real Talk (UK) - COVID-19: Evidence-based advice for difficult conversations SECPAL and AECPAL (Spain) - Recomendaciones para Profesionales de Atención Domiciliaria en Cuidados Paliativos (in Spanish) Serious Illness Conversations (USA) - Specific phrases & word choices that can be helpful when dealing with COVID19 Spiritual Care Association (USA) - Chaplaincy in the Time of COVID Swiss Medical Weekly (Switzerland) - Palliative Care for Elderly&Frail Patients at home &in Residential&Nursing Homes Universidad de Navarra (Spain) - Guías rápidas de apoyo y control sintomático en pacientes avanzados con COVID-19 (in Spanish) University of Glasgow (UK) - Palliative Care and COVID-19, U Glasgow, David Clark Up To Date (USA) - Society guideline links: Coronavirus disease 2019 (COVID-19) Vital Talk (USA) - Covid Ready Communication Skills (in several languages) Vital Talk (USA) - COVID-ready communication skills: A playbook of VitalTalk Tips World Medical Association - Statement on Medical Ethics in the event of disasters WHPCA (UK) - COVID-19 Resources
Abbott J, Johnson D, Wynia M. Ensuring Adequate Palliative and Hospice Care During COVID-19 Surges. JAMA 2020. 324(14): 1393-1394 doi:10.1001/jama.2020.16843 Abel J, Kellehear A, Millington Sanders C, Taubert M, Kingston H. Advance care planning re-imagined: a needed shift for COVID times and beyond. Palliative Care & Social Practice 2020, Vol. 14: 1–8 DOI: 10.1177/ 2632352420934491 Abu-Odah, H., Molassiotis, A. & Liu, J. Challenges on the provision of palliative care for patients with cancer in low- and middle-income countries: a systematic review of reviews. BMC Palliat Care 19, 55 (2020). https://doi.org/10.1186/s12904-020-00558-5 Adams C. Goals of Care in a Pandemic: Our Experience and Recommendations, JPSM 2020; 60(1): E15-E17. DOI: https://doi.org/10.1016/j.jpainsymman.2020.03.018 Albarracin Z, Silverman M, Mineo J, Al-Abbasi B, Koff S, Martell C, Levene RS. Health Care Workers' Knowledge, Attitudes, and Beliefs Related to COVID-19 in Palliative Medicine and Hospice Care. Palliative Medicine Reports. Volume 1.1, 2020 DOI: 10.1089/pmr.2020.0115 Arantzamendi M, Belar A, Payne S, Rijpstra M, Preston N, Menten J, Van der Elst M, Radbruch L, Hasselaar J, Centeno C. Clinical aspects of palliative sedation in prospective studies. A systematic review. JPSM 2020. (In Press Journal Pre-Proof). DOI:https://doi.org/10.1016/j.jpainsymman.2020.09.022 Arya A, Buchman S, Gagnon B, Downar J. Pandemic palliative care: beyond ventilators and saving lives. CMAJ 2020. doi: 10.1503/cmaj.200465 Astudillo W, Salinas A, Piolatti A, Bastos Z, Comba J, Mendinueta C, Fernández R, Zapata R, Díaz E, Ruiz R, De la Fuente C. Manejo Clínico de los Niños y Adolescentes ante la Pandemia de COVID-19. Revista El Dolor 73: 32-40; 2021 Astudillo W, Salinas A, Brandao Z, Carmona F, De Pablo A, Piolatti A, Comba J, Torres LM, Vázquez S, Gutiérrez A, Pérez-García M, Mendinueta C, Zamora A, Díaz E, Santamaría D, Fernández R, Grove X, De la Fuente C. Manejo clínico y paliativo del sufrimiento en la COVID-19. Revista El Dolor 71:10-21; 2019 Bajwah S, Wilcock A, Towers R, Costantini M, et al. Managing the supportive care needs of those affected by COVID-19. European Respiratory Journal 2020; DOI: 10.1183/13993003.00815-2020 Basky G. Temporary fixes to chronic drug shortages leave Canada vulnerable. CMAJ August 04, 2020 192 (31) E898-E899; DOI: https://doi.org/10.1503/cmaj.1095886 Blinderman CD, Adelman R, Kumaraiah D, Pan CX, Palathra BC, Kaley K, Trongone N, Spillane K. A Comprehensive Approach to Palliative Care during the Coronavirus Pandemic. JPM Volume XX, Number XX, 2020. https://doi.org/10.1089/jpm.2020.0481 Bone AE, Finucane AM, Leniz J, Higginson IJ, Sleeman KE. Changing patterns of mortality during the COVID-19 pandemic: Population-based modelling to understand palliative care implications. Palliative Medicine 2020; 34(9): 1193-1201. https://doi.org/10.1177/0269216320944810 Boufkhed S, Namisango E, Luyirika E, Sleeman KE, Costantini M, Peruselli C, Normand C, Higginson IJ, Harding R. Preparedness of African palliative care services to respond to the COVID-19 pandemic: A rapid assessment. JPSM 2020 (in press). DOI:https://doi.org/10.1016/j.jpainsymman.2020.09.018 British Medical Journal - Managing COVID-19 Symptoms(including at the end of life) in the community: summary of NICE guidelines. BMJ 2020; 369 doi: https://doi.org/10.1136/bmj.m1461 (Published 20 April 2020) Burman R, Cairns R, Canestrini S, Elias E, Metaxa V, Owen G, Polat H, Keene AR, Sutherland E. Making ordinary decisions in extraordinary times. BMJ 2020; 370:m3268. doi: https://doi.org/10.1136/bmj.m3268 Cassum S, Mansoor K, Hirji A, David A, Aijaz A. Challenges in Teaching Palliative Care Module Virtually during COVID-19 Era. Asia Pacific Journal of Oncology Nursing. 2020;7(4):301-304. doi: 10.4103/apjon.apjon_42_20 Chochinov HM, Bolton J, Sareen J. Death, Dying, and Dignity in the Time of the COVID-19 Pandemic. JPM 2020; 23(10):1294-1295. https://doi.org/10.1089/jpm.2020.0406 Chua IS, Shi SM, Levine DM. Place of Death and End-of-Life Care Utilization among COVID-19 Decedents in a Massachusetts Health Care System. JPM 2020. Volume XX, Number XX, 2020. DOI: 10.1089/jpm.2020.0674 Ciruzzi MS. Algunos apuntes bioéticos, paliativos y legales sobre la pandemia de COVID-19. La Ley. AÑO LXXXIV Nº 80. TOMO LA LEY 2020-B. Buenos Aires, Argentina 2020. ISSN 0024-1636. Cooper Z, Bernacki RE. To Face Coronavirus Disease 2019, Surgeons Must Embrace Palliative Care. JAMA Surg. 2020. doi:10.1001/jamasurg.2020.1698 Costantini M, Sleeman KE, Peruselli C, Higginson IJ Response and role of palliative care during the COVID-19 pandemic: a national telephone survey of hospices in Italy. Palliative Medicine 2020, Vol. 34(7) 889–895. https://doi.org/10.1177/0269216320920780 Curley, M.A.Q., Broden, E.G. & Meyer, E.C. Alone, the hardest part. Intensive Care Med 46, 1974–1976 (2020). https://doi.org/10.1007/s00134-020-06145-9 D Sarmiento PJ. Wounded healers: a call for spiritual care towards healthcare professionals in time of COVID-19 pandemic. Journal of Public Health, fdaa232, https://doi.org/10.1093/pubmed/fdaa232 Downar, J, Seccareccia, D. Palliating a pandemic: All patients must be cared for. JPSM, 2010; 39 (2), 291-295 DOI.org/10.1016/j.jpainsymman.2009.11.241 Efstathiou N, Vanderspank-Wright B, Vandyk A, Al-Janabi M, Daham Z, Sarti A, Delaney JW, Downar J. Terminal withdrawal of mechanical ventilation in adult intensive care units: A systematic review and narrative synthesis of perceptions, experiences and practices. Palliative Medicine 2020; 34(9):1140-1164. https://doi.org/10.1177/0269216320935002 Ekberg K, Weinglass L, Ekberg S, Danby S, Herbert A. The pervasive relevance of COVID-19 within routine paediatric palliative care consultations during the pandemic: A conversation analytic study. PMJ 2020. https://doi.org/10.1177/0269216320950089 Emanuel L, Solomon S, Fitchett G, Chochinov H, Handzo G, Schoppee T, Wilkie D. Fostering Existential Maturity to Manage Terror in a Pandemic. Fostering Existential Maturity to Manage Terror in a Pandemic. JPM 2020; Volume XX(XX): 1-7. https://doi.org/10.1089/jpm.2020.0263 Escobio F, Nouvet E. E bola virus disease and palliative care in humanitarian crises. Lancet 2019;393:1100. https://doi.org/10.1016/S0140-6736(19)30295-8 Etkind SN, Bone AE, Lovell N, Crippss RL, Harding R, Higginson IJ, Sleeman KE, - The role and response of palliative care and hospice services in epidemics and pandemics: a rapid review to inform practice during the COVID-19 pandemic. JPMS 2020; 60(1): E31-E40. DOI: https://doi.org/10.1016/j.jpainsymman.2020.03.029 Fausto J, Hirano L, Lam D, et al. Creating a Palliative Care Inpatient Response Plan for COVID19 – The UW Medicine Experience. JPSM 2020; 60(1): E21-E26. DOI https://doi.org/10.1016/j.jpainsymman.2020.03.025 Ferguson L, Barham D. Palliative Care Pandemic Pack: a Specialist Palliative Care Service response to planning the COVID-19 pandemic. JPSM 2020; 60(1): E18-E20. DOI: https://doi.org/10.1016/j.jpainsymman.2020.03.026 Ferrell BR, Handzo G, Picchi T, Puchalski C, Rosa WE. The Urgency of Spiritual Care: COVID-19 and the Critical Need for Whole-Person Palliation. JPSM 2020; 60(3): E7-E11. DOI:https://doi.org/10.1016/j.jpainsymman.2020.06.034 Fiorentino M, Pentakota SR, Mosenthal AC, Glass NE. The Palliative Performance Scale predicts mortality in hospitalized patients with COVID-19. Palliative Medicine 2020; 34(9),1228-1234 https://doi.org/10.1177/0269216320940566 Florêncio RS, Cestari VR, Souza LC, Flor AC, Nogueira VP, Moreira TM, Góes Salvetti M, Mendes de Paula Pessoa VL. Cuidados paliativos no contexto da pandemia de COVID-19: desafi os e contribuições. Acta Paul Enferm. 2020;33:eAPE20200188. DOI:http://dx.doi.org/10.37689/actaape/2020AO01886 (Portuguese) Foley,G. Video-based online interviews for palliative care research: A new normal in COVID-19?. Palliative Medicine 2021, Vol. 35(3) 625–626. https://doi.org/10.1177/0269216321989571 Franchini L, Varani S, Ostan R, Bocchi I, Pannuti R, Biasco G, Bruera E. Home palliative care professionals perception of challenges during the Covid-19 outbreak: A qualitative study. Palliative Medicine 2021, Vol. 35(5) 862–874. https://doi.org/10.1177/02692163211008732 Frydman JL, Choi EW, Lindenberger EC. Families of COVID-19 Patients Say Goodbye on Video: A Structured Approach to Virtual End-of-Life Conversations. JPM 2020; 23(12): 1564-1565. DOI: 10.1089/jpm.2020.0415 Fusi-Schmidhauser T, Preston N, Nikola K, Gamondi C. Conservative management of COVID-19 patients-emergency palliative care in action. JPSM 2020; 60(1): E27-E30. DOI:https://doi.org/10.1016/j.jpainsymman.2020.03.030 Glass M, Rana S, Coghlan R, Lerner ZI, Harrison JD, Stoltenberg M, Namukwaya E, Humphreys J. Global Palliative Care Education in the Time of COVID-19. JPSM 2020; 60(4):E14-E19. Corrected Proof) https://doi.org/10.1016/j.jpainsymman.2020.07.018 Gibbon LM, GrayBuck KE, Mehta A, Perry S.E, Peterson S, Schreiber KM, Merel SE. Equitable Care for Critically Ill Patients from Culturally Diverse Communities in the COVID-19 Pandemic. JPM 2020; 23(12): 1559-1561. DOI: 10.1089/jpm.2020.0347 Goldenberg DL. COVID-19: What It Means for Diabetics, The Obese and Those with Other Immune Diseases. Practical Pain Management (PPM) April 2020 Gostin LO, Friedman EA, Wetter SA. Responding to COVID‐19: How to Navigate a Public Health Emergency Legally and Ethically. The Hastings Center Report 2020; 50(2): 8-12. https://doi.org/10.1002/hast.1090 Hanne Konradsen , Trine Solander True , Helle Wendner Vedsegaard , Gitte Wind & Kristoffer Marsaa. Maintaining control: A qualitative study of being a patient in need of specialized palliative care during the COVID-19 pandemic. Progress in Palliative Care 2021.DOI: 10.1080/09699260.2021.1872139 Hanson LC. We Will All Be Changed: Palliative Care Transformation in the Time of COVID-19. JPM 2020. https://doi.org/10.1089/jpm.2020.0446 Heidari SN. Touch, and the absence of it. The Lancet Respiratory Medicine 2021. Volume 9, ISSUE 3, P233-234. DOI:https://doi.org/10.1016/S2213-2600(21)00028-X Hendin A, La Rivière CG, Williscroft DM, O’Connor E, Hughes J, and Fischer LM. End-of-life care in the Emergency Department for the patient imminently dying of a highly transmissible acute respiratory infection (such as COVID-19). Canadian Journal of Emergency Medicine 2020. DOI: 10.1017/cem.2020.352 Hetherington L, Johnston B, Kotronoulas G, Finlay F, Keeley P, McKeown A. COVID-19 and Hospital Palliative Care – A service evaluation exploring the symptoms and outcomes of 186 patients and the impact of the pandemic on specialist Hospital Palliative Care. Palliative Medicine 2020, Vol. 34(9) 1256–1262. https://doi.org/10.1177/0269216320949786 Heyland DK. Advance Care Planning (ACP) vs. Advance Serious Illness Preparations and Planning (ASIPP). Healthcare 2020, 8(3), 218; https://doi.org/10.3390/healthcare8030218 Hollander JE, Carr BG. Virtually Perfect? Telemedicine for Covid-19. NEJM 2020; 382:1679-1681 DOI: 10.1056/NEJMp2003539 Jackson T, Hobson K, Clare H, Weegmann D, Moloughney C, McManus S. End-of-life care in COVID-19: An audit of pharmacological management in hospital inpatients. Palliative Medicine 2020; 34(9):1235-1240. https://doi.org/10.1177/0269216320935361 Jöbges S, Vinay R, Luyckx VA, Biller‐Andorno N. Recommendations on COVID‐19 triage: international comparison and ethical analysis. Bioethics 2020. https://doi.org/10.1111/bioe.12805 Kako J, Kajiwara K. Scoping Review: What Is the Role of Nurses in the Era of the Global COVID-19 Pandemic?. JPM 2020; 23(12): 1566-1567. DOI: 10.1089/jpm.2020.0439 Kates J, Gerolamo A, Pogorzelska‐Maziarz M. The impact of COVID‐19 on the hospice and palliative care workforce. PHN 2020;00:1–5. https://doi.org/10.1111/phn.12827 Krishna LKR, Neo HY, Chia EWY, Tay KT, Chan N, Neo PSH, Goh C, Peh TY, Chiam M, Low JAYH. The role of palliative medicine in ICU bed allocation in COVID-19: a joint position statement of the Singapore Hospice Council and the Chapter of Palliative Medicine Physicians. Asian Bioethics Review (2020) 12:205–211. https://doi.org/10.1007/s41649-020-00128-0 Kunz R, Minder M. COVID-19 Pandemic: palliative care for elderly and frail patients at home and in residential and nursing homes. Swiss Med Wkly 2020. DOI: https://doi.org/10.4414/smw.2020.20235 Leong, Ian Yi-Onn, Angel Onn-Kei Lee, Tzer Wee Ng, Lay Beng Lee, et al. The challenge of providing holistic care in a viral epidemic: opportunities for palliative care. Palliative Medicine 18, no. 1 (2004): 12-18 doi.org/10.1191/0269216304pm859oa Lerner ZI, Burke RV, McCall J, Leigh A, Glass M. A case report of COVID-19 in New Orleans, Louisiana: Highlighting the complexities of prognostication in a critically ill patient, Palliative Medicine Reports (2020) 1:1, 227–231, DOI: 10.1089/pmr.2020.0087. Llaca García E, Templos Esteban LA. The Covid-19 pandemic in Mexico: The fundamental role of palliative care and bioethics. Medicina y Ética 2021. https://doi.org/10.36105/mye.2021v32n1.05 Lohman D, Barrett D. Scheduling medicines as controlled substances: addressing normative and democratic gaps through human rights-based analysis. BMC International Human Rights 20, 10(2020). https://doi.org/10.1186/s12914-020-00231-1 López Temina, Nerea; Arlandis Narbona, Paula; Martín Utrilla, Salvador. ¿CÓMO MEJORAR LA DOCENCIA EN CUIDADOS PALIATIVOS EN TIEMPO DE COVID-19?. THERAPEÍA 13 [Octubre 2020], 17-37, ISSN: 1889-611 Lovell N, Maddocks M, Etkind SN, Taylor K, Carey I, Vora V, Marsh L, Higginson IJ, Prentice W, Edmonds P, Sleeman KE. Characteristics, symptom management and outcomes of 101 patients with COVID-19 referred for hospital palliative care. JPSM 2020. DOI: https://doi.org/10.1016/j.jpainsymman.2020.04.015 Lowe J , Rumbold B, Aoun SM. Memorialisation during COVID-19: implications for the bereaved, service providers and policy makers. Palliative Care & Social Practice 2020, Vol. 14: 1–9 DOI: 10.1177/ 2632352420980456 Lu E. Communication Strategies for Kidney Disease in the Time of COVID-19. JPM 2020. https://doi.org/10.1089/jpm.2020.0217 Macmillan PJ. COVID-19: No Visitors. JPM Volume XX, Number XX, 2021. https://doi.org/10.1089/jpm.2021.0053 Masumi U, Martins R, Hendrie PC, McDonnell T, Crews JR, Wong TL, McCreery B et al. Managing Cancer Care During the COVID-19 Pandemic: Agility and Collaboration Toward a Common Goal. JNCCN 1, no. aop (2020): 1-4 DOI: https://doi.org/10.6004/jnccn.2020.7560 Mehta AK, Smith TJ. Palliative Care for Patients With Cancer in the COVID-19 Era. JAMA Oncol. 2020;6(10):1527-1528. doi:10.1001/jamaoncol.2020.1938 Mills, J. Advancing research and evidence for compassion-based interventions: A matter of the head or heart?. Palliative Medicine 2020, Vol. 34(8) 973–975. https://doi.org/10.1177/0269216320945970 Moriyama D, Scherer JS, Sullivan R, Lowy J, T. Berger JT. The Impact of COVID-19 Surge on Clinical Palliative Care: A Descriptive Study From a New York Hospital System. JPSM 2020. DOI:https://doi.org/10.1016/j.jpainsymman.2020.12.011.(in press) Neville TH. COVID-19: A Time for Creative Compassion. JPM 2020; 23(7):990-991. DOI: 10.1089/jpm.2020.0242 Norris J. How Hospitals, Hospices & Care facilities can use Skype to reduce loneliness during the Coronavirus (COVID-19) pandemic. BMJSPCblog 2020.03.15 Nouvet, Elysée, Mollie Sivaram, Kevin Bezanson, Gautham Krishnaraj, Matthew Hunt, Sonya de Laat, Stephanie Sanger, Laura Banfield, Pedro Favila Escobio Rodriguez, and Lisa J. Schwartz. Palliative care in humanitarian crises: a review of the literature. Journal of International Humanitarian Action 3, 1(2018):5. doi.org/10.1186/s41018-018-0033-8 O'Donnell MB, Adhikari EA, Rosenberg AR, Yi-Frazier JP. Promoting Resilience for Pediatric Health Care Workers in the Era of COVID-19: The PRISM at Work Program. JPM 2020. https://doi.org/10.1089/jpm.2020.0584 Oluyase AO, Hocaoglu M, Cripps RL , Maddocks M , Walshe C, Fraser LK, Preston N, Dunleavy L , Bradshaw A, Murtagh Fliss E.M., Bajwah S, Sleeman KE, Higginson IJ. The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall). JPSM 2021DOI:https://doi.org/10.1016/j.jpainsymman.2021.01.138 (in press) Onwuteaka-Philipsen,BD., Pasman,HRW., Korfage,IJ., Witkamp,E., Zee M., van Lent,LGG., Goossensen,A., van der Heide,A. Dying in times of the coronavirus: An online survey among healthcare professionals about end-of-life care for patients dying with and without COVID-19 (the CO-LIVE study). Palliative Medicine 2021, Vol. 35(5) 830–842. https://doi.org/10.1177/02692163211003778 Paice JA, Wholihan D, Dahlin C, et al. Palliative Nursing: The Core of COVID-19 Care. J Hosp Palliat Nurs. 2021;23(1):6-8. doi:10.1097/NJH.0000000000000709 (New )Patneaude A, Kett J. Cultural responsiveness and palliative care during the COVID-19 pandemic, Palliative Medicine Reports (2020) 1:1, 171–173, DOI: 10.1089/pmr.2020.0049 Pearce C, Honey JR, Lovick R, Creamer NZ, Henry C, Langford A, Stobert M, Barclay S. ‘A silent epidemic of grief’: a survey of bereavement care provision in the UK and Ireland during the COVID-19 pandemic. BMJ Open 2021;11:e046872. doi:10.1136/ bmjopen-2020-046872 Perez-Moreno DP, López-Ramírez JH, Torres-Espinosa C. Cuidados paliativos para pacientes con infección por SARS-CoV-2/COVID-19; propuesta de un modelo de atención. Revista Mexicana de Anestesiología, 2020; 43 (4): 288-295. https://dx.doi.org/10.35366/94942 doi: 10.35366/94942 Pettus K, Cleary JF, De Lima L, Ahmed E, Radbruch L. Availability of Internationally Controlled Essential Medicines in the COVID-19 Pandemic. Journals of Pain and Symptom Management, 2020; 60(2): E48-E51. https://doi.org/10.1016/j.jpainsymman.2020.04.153 Potenza L, Luppi M, Efficace F, Bruera E, Bandieri E. COVID‐19 Pandemic and Cancer: The Importance of Early Palliative Care. The Oncologist 2020;25:1–3. https://doi.org/10.1002/onco.13587 Powell RA, Rodriquez-Campos L, OpareLokko EB, Ebenso BE, Allsop MJ. ‘Flattening’ one curve: what about ‘raising the line’ on the other? COVID-19 and palliative care in low-income and middleincome countries. BMJ Supportive & Palliative Care 2021;0:1–3. doi:10.1136/bmjspcare-2020-002675 Powell VD, Silveira MJ. What Should Palliative Care's Response be to the COVID-19 Epidemic? JPSM 2020; 60(1): E1-E3. DOI: https://doi.org/10.1016/j.jpainsymman.2020.03.013 Radbruch L, Knaul FM, de Lima L, de Joncheere C, Bhadelia A. The key role of palliative care in response to the COVID-19 tsunami of suffering. The Lancet 2020. 395(10235):P1467-1469 DOI: https://doi.org/10.1016/S0140-6736(20)30964-8 Rao A, Kelemen A. Lessons Learned from Caring for Patients with COVID-19 at the End of Life. JPM 2020;Volume XX (XX): 1-4. DOI: 10.1089/jpm.2020.0251 Roberts B, Wright SM, Christmas C, Robertson M, Wu DS. COVID-19 Pandemic Response: Development of Outpatient Palliative Care Toolkit Based on Narrative Communication. American Journal of Hospice & Palliative Medicine 2020;Volume: 37(11): 985-987. https://doi.org/10.1177/1049909120944868 Rosa W, Gray T, Chow K, Davidson P, Dionne-Odom J.N, Karanja V, Khanyola J, Kpoeh JD, Lusaka J, Matula ST, Mazanec P, Moreland PJ, Pandey S, de Campos AP, Meghani SH. Recommendations to Leverage the Palliative Nursing Role During COVID-19 and Future Public Health Crises. Journal of Hospice & Palliative Nursing 2020; 22(4):260-269. doi: 10.1097/NJH.0000000000000665 Rosa WE, Anderson E, Applebaum AJ, Ferrell BR, Kestenbaum A, Nelson JE. Coronavirus Disease 2019 as an Opportunity to Move toward Transdisciplinary Palliative Care. JPM 2020. DOI: 10.1089/jpm.2020.0306 Rosa WE, Davidson PM. Nursing and Health Policy Perspectives. Coronavirus disease 2019 (COVID-19): strengthening our resolve to achieve universal palliative care. International Nursing Review(INR) 2020 Rosa WE, Meghani SH, Stone PW, Ferrell BR, Opportunities for Nursing Science to Advance Patient Care in the Time of COVID-19: A Palliative Care Perspective. J Nurs Scholarsh. 2020;52(4):341-343. doi:10.1111/jnu.12570 Rosa WE, Ferrell BR, Applebaum AJ. The alleviation of suffering during the COVID-19 pandemic. Palliative Care and Supportive Care. Palliative and Supportive Care, 1–3. DOI: https://doi.org/10.1017/S1478951520000462 Rosa WE, Ferrell BR, Mason DJ. Integration of Palliative Care Into All Serious Illness Care as A Human Right. JAMA Health Forum. 2021;2(4):e211099. doi:10.1001/jamahealthforum.2021.1099 Rosa WE, Ferrell BR, Wiencek C. Increasing Critical Care Nurse Engagement of Palliative Care During the COVID-19 Pandemic. Critical Care Nurse (2020) 40 (6): e28–e36. https://doi.org/10.4037/ccn2020946 Rosa WE, Shook A, Acquaviva KD. LGBTQ+ Inclusive Palliative Care in the Context of COVID-19: Pragmatic Recommendations for Clinicians. JPSM 2020. https://doi.org/10.1016/j.jpainsymman.2020.04.155 Rosa WE, Ferrell BR, Mazanec P. Global Integration of Palliative Nursing Education to Improve Health Crisis Preparedness. J Contin Educ Nurs . 2021;52(3):130-135. doi:10.3928/00220124-20210216- 07 (New ) Rose C. Am I Part of the Cure or Am I Part of the Disease? Keeping Coronavirus Out When a Doctor Comes Home. NEJM 2020; 382:1684-1685. DOI: 10.1056/NEJMp2004768 Rosenbaum L. Facing Covid-19 in Italy—Ethics, Logistics, and Therapeutics on the Epidemic’s Front Line. NEJM 2020; 382:1873-1875. DOI: 10.1056/NEJMp2005492 Rotenstein L, Lamey J, Wichmann L, Arbour MC, Lakin J, Cunningham R. Conversing with High-Risk Patients to Determine Serious Illness Goals and Values in the Time of Covid-19. NEJM Catalyst Innovations in Care Delivery 2021; 03 DOI:https://doi.org/10.1056/CAT.20.0600 Schockett E, Ishola M, Wahrenbrock T, Croskey A, Cain S, Benjenk I, Davison D, Yamane D, The Impact of Integrating Palliative Medicine into COVID-19 Critical Care, Journal of Pain and Symptom Management (2021), doi: https://doi.org/10.1016/j.jpainsymman.2020.12.014.(in press) Schoenherr LA, Cook A, Peck S, Humphreys J, Goto Y, Saks NT, Huddleston L, Elia G, Pantilat SZ. Proactive Identification of Palliative Care Needs Among Patients With COVID-19 in the ICU. JPSM 2020. DOI:https://doi.org/10.1016/j.jpainsymman.2020.06.008 Selman Lucy E, Chao D, Sowden R, Marshall S, Chamberlain Ch, Koffman J. Bereavement support on the frontline of COVID-19: Recommendations for hospital clinicians. JPSM 2020; 60(2):E81-E86. DOI: https://doi.org/10.1016/j.jpainsymman.2020.04.024 Stoltenberg M, Jacobsen J, Wilson E, Daubman B-R, Ritchie CS, Petrillo L, Jackson V, Aaronson EL. Emergency Department-Based Palliative Care during COVID. JPM 2020. https://doi.org/10.1089/jpm.2020.0285 Strang P, Bergström J, Lundström S. Symptom Relief Is Possible in Elderly Dying COVID-19 Patients: A National Register Study. JPM 2020;Volume XX (XX):1-6. DOI: 10.1089/jpm.2020.0249 Sullivan Donald R., Curtis J. Randall. A View from the Frontline: Palliative and Ethical Considerations of the COVID-19 Pandemic. JPM 2020. DOI: 10.1089/jpm.2020.0426 Ting R, Edmonds P, Higginson IJ, Sleeman KE. Palliative care for patients with severe covid-19. BMJ 2020; 370 doi: https://doi.org/10.1136/bmj.m2710 (Published 14 July 2020) Tran D, Lai S, Salah R, Wong A, Bryon J, McKenna M, Chan Y. Rapid De-Escalation and Triaging Patients in Community-Based Palliative Care. JPSM 2020; 60(1): E45-E47. DOI: https://doi.org/10.1016/j.jpainsymman.2020.03.040 Truog RD, Mitchell C, Daley, GQ. The Toughest Triage — Allocating Ventilators in a Pandemic. NEJM 2020; 382:1973-1975. DOI: 10.1056/NEJMp2005689 Turner J, Hodgson LE, Leckie T, Eade L, Ford-Dunn S. A dual-centre observational review of hospital based palliative care in patients dying with COVID-19. JPSM 2020; 60(2):E75-E78. DOI: https://doi.org/10.1016/j.jpainsymman.2020.04.031 Wallace CL, Wladkowoski SP, Gibson A, White P. - Grief During the COVID-19 Pandemic: Considerations for Palliative Care Providers. JPSM 2020; 60(1): E70-E76. https://doi.org/10.1016/j.jpainsymman.2020.04.012 Walshe,C. Perspectives on COVID-19 and palliative care research. Palliative Medicine 2021, Vol. 35(1) 4–5. https://doi.org/10.1177/0269216320983949 Wang Samuel S.Y., Teo Wendy Z.W., Teo Winnie Z.Y., Chai Yong Woon. Virtual Reality as a Bridge in Palliative Care during COVID-19. JPM 2020 https://doi.org/10.1089/jpm.2020.0212 Weaver MS, Wiener L. Applying Palliative Care Principles to Communicate with Children about COVID-19. JPSM 2020; 60(1): E8-E11. https://doi.org/10.1016/j.jpainsymman.2020.03.020 Weaver MS, Rosenberg AR, Fry A, Shostrom V, Wiener L. The Impact of the Coronavirus Pandemic on Pediatric Palliative Care Team Structures, Services, and Care Delivery. JPM 2020. XX(XX): 1-8. DOI: 10.1089/jpm.2020.0589 Wu Y, Wang J, Luo C, Hu S, Lin X, Anderson AE, Bruera E, Yang X, Wei S, Qian Y. A comparison of burnout frequency among oncology physicians and nurses working on the front lines and usual wards during the COVID-19 epidemic in Wuhan, China. JPSM 2020; 60(1): E60-E65. https://doi.org/10.1016/j.jpainsymman.2020.04.008 Wynne KJ, Petrova M, Coghlan R. Dying individuals and suffering populations: applying a population-level bioethics lens to palliative care in humanitarian contexts: before, during and after the COVID-19 pandemic. BJM 2020. http://dx.doi.org/10.1136/medethics-2019-105943 Xu Y, Zhang LK, Smeltz RL, Cohen SE. A Vital Layer of Support: One Safety Net Hospital's Palliative Care Response to the Pandemic. JPM Volume XX, Number XX, 2021. https://doi.org/10.1089/jpm.2020.0571
General on COVID-19
Issues Relevant to Palliative Care and COVID-19 by Themes
1. Access to Medicines
Jackson T, Hobson K, Clare H, Weegmann D, Moloughney C, McManus S. End-of-life care in COVID-19: An audit of pharmacological management in hospital inpatients. Palliative Medicine 2020; 34(9):1235-1240. https://doi.org/10.1177/0269216320935361 Lohman D, Barrett D. Scheduling medicines as controlled substances: addressing normative and democratic gaps through human rights-based analysis. BMC International Human Rights 20, 10(2020). https://doi.org/10.1186/s12914-020-00231-1
Pettus K, Cleary JF, De Lima L, Ahmed E, Radbruch L. Availability of Internationally Controlled Essential Medicines in the COVID-19 Pandemic. Journals of Pain and Symptom Management, 2020; 60(2):E-48-E51. https://doi.org/10.1016/j.jpainsymman.2020.04.153
2. Alleviation of Suffering
Rosa WE, Ferrell BR, Applebaum AJ. The alleviation of suffering during the COVID-19 pandemic. Palliative Care and Supportive Care. Palliative and Supportive Care 2020. DOI: https://doi.org/10.1017/S1478951520000462 Wynne KJ, Petrova M, Coghlan R. Dying individuals and suffering populations: applying a population-level bioethics lens to palliative care in humanitarian contexts: before, during and after the COVID-19 pandemic. BJM 2020. http://dx.doi.org/10.1136/medethics-2019-105943
3. Bereavement/Grief support
Selman Lucy E, Chao D, Sowden R, Marshall S, Chamberlain Ch, Koffman J. Bereavement support on the frontline of COVID-19: Recommendations for hospital clinicians. JPSM 2020; 60(2):E81-E86. DOI: https://doi.org/10.1016/j.jpainsymman.2020.04.024
Wallace CL, Wladkowoski SP, Gibson A, White P. - Grief During the COVID-19 Pandemic: Considerations for Palliative Care Providers. JPSM 2020; 60(1): E70-E76. https://doi.org/10.1016/j.jpainsymman.2020.04.012
4. Bioethical/Legal Aspects
Arantzamendi M, Belar A, Payne S, Rijpstra M, Preston N, Menten J, Van der Elst M, Radbruch L, Hasselaar J, Centeno C. Clinical aspects of palliative sedation in prospective studies. A systematic review. JPSM 2020. (In Press Journal Pre-Proof). DOI:https://doi.org/10.1016/j.jpainsymman.2020.09.022 Burman R, Cairns R, Canestrini S, Elias E, Metaxa V, Owen G, Polat H, Keene AR, Sutherland E. Making ordinary decisions in extraordinary times. BMJ 2020; 370:m3268. doi: https://doi.org/10.1136/bmj.m3268 Ciruzzi MS. Algunos apuntes bioéticos, paliativos y legales sobre la pandemia de COVID-19. La Ley. AÑO LXXXIV Nº 80. TOMO LA LEY 2020-B. Buenos Aires, Argentina 2020. ISSN 0024-1636. Efstathiou N, Vanderspank-Wright B, Vandyk A, Al-Janabi M, Daham Z, Sarti A, Delaney JW, Downar J. Terminal withdrawal of mechanical ventilation in adult intensive care units: A systematic review and narrative synthesis of perceptions, experiences and practices. Palliative Medicine 2020; 34(9):1140-1164. https://doi.org/10.1177/0269216320935002
Gostin LO, Friedman EA, Wetter SA. Responding to COVID‐19: How to Navigate a Public Health Emergency Legally and Ethically. The Hastings Center Report 2020; 50(2):8-12. https://doi.org/10.1002/hast.1090 Krishna LKR, Neo HY, Chia EWY, Tay KT, Chan N, Neo PSH, Goh C, Peh TY, Chiam M, Low JAYH. The role of palliative medicine in ICU bed allocation in COVID-19: a joint position statement of the Singapore Hospice Council and the Chapter of Palliative Medicine Physicians. ABR 12, 205–211 (2020). https://doi.org/10.1007/s41649-020-00128-0
Lohman D, Barrett D. Scheduling medicines as controlled substances: addressing normative and democratic gaps through human rights-based analysis. BMC International Human Rights 20, 10(2020). https://doi.org/10.1186/s12914-020-00231-1
Rosenbaum L. Facing Covid-19 in Italy—Ethics, Logistics, and Therapeutics on the Epidemic’s Front Line. NEJM 2020; 382:1873-1875 . DOI: 10.1056/NEJMp2005492
Sullivan Donald R., Curtis J. Randall. A View from the Frontline: Palliative and Ethical Considerations of the COVID-19 Pandemic. JPM 2020. DOI: 10.1089/jpm.2020.0426
Tran D, Lai S, Salah R, Wong A, Bryon J, McKenna M, Chan Y. Rapid De-Escalation and Triaging Patients in Community-Based Palliative Care. JPSM 2020; 60(1):E45-E-47. DOI: https://doi.org/10.1016/j.jpainsymman.2020.03.040
Truog RD, Mitchell C, Daley, GQ. The Toughest Triage — Allocating Ventilators in a Pandemic NEJM 2020; 382: 1973-1975. DOI: 10.1056/NEJMp2005689
5. Burnout Kates J, Gerolamo A, Pogorzelska‐Maziarz M. The impact of COVID‐19 on the hospice and palliative care workforce. PHN 2020;00:1–5. https://doi.org/10.1111/phn.12827 Wu Y, Wang J, Luo C, Hu S, Lin X, Anderson AE, Bruera E, Yang X, Wei S, Qian Y. A comparison of burnout frequency among oncology physicians and nurses working on the front lines and usual wards during the COVID-19 epidemic in Wuhan, China. JPSM 2020 ; 60(1) E-60-E65. https://doi.org/10.1016/j.jpainsymman.2020.04.008
6. Communication
Ekberg K, Weinglass L, Ekberg S, Danby S, Herbert A. The pervasive relevance of COVID-19 within routine paediatric palliative care consultations during the pandemic: A conversation analytic study. PMJ 2020. https://doi.org/10.1177/0269216320950089 Lu E. Communication Strategies for Kidney Disease in the Time of COVID-19. JPM 2020. https://doi.org/10.1089/jpm.2020.0217
Weaver MS, Wiener L. Applying Palliative Care Principles to Communicate with Children about COVID-19. JPSM 2020; 60(1): E8-E11. https://doi.org/10.1016/j.jpainsymman.2020.03.020
7. Education
Glass M, Rana S, Coghlan R, Lerner ZI, Harrison JD, Stoltenberg M, Namukwaya E, Humphreys J. Global Palliative Care Education in the Time of COVID-19. JPSM 2020; 60(4): E14-E19. https://doi.org/10.1016/j.jpainsymman.2020.07.018
8. Emergency
Fusi-Schmidhauser T, Preston N, Nikola K, Gamondi C. Conservative management of COVID-19 patients-emergency palliative care in action. JPSM 2020; 60(1) E27-E30. DOI:https://doi.org/10.1016/j.jpainsymman.2020.03.030
Hendin A, La Rivière CG, Williscroft DM, O’Connor E, Hughes J, and Fischer LM. End-of-life care in the Emergency Department for the patient imminently dying of a highly transmissible acute respiratory infection (such as COVID-19). Canadian Journal of Emergency Medicine 2020. DOI: 10.1017/cem.2020.352
Stoltenberg M, Jacobsen J, Wilson E, Daubman B-R, Ritchie CS, Petrillo L, Jackson V, Aaronson EL. Emergency Department-Based Palliative Care during COVID. JPM 2020. https://doi.org/10.1089/jpm.2020.0285
9. Goals of Care
Abbott J, Johnson D, Wynia M. Ensuring Adequate Palliative and Hospice Care During COVID-19 Surges. JAMA 2020. doi:10.1001/jama.2020.16843 Adams C. Goals of Care in a Pandemic: Our Experience and Recommendations, JPSM 2020 (in press). DOI: https://doi.org/10.1016/j.jpainsymman.2020.03.018 Arantzamendi M, Belar A, Payne S, Rijpstra M, Preston N, Menten J, Van der Elst M, Radbruch L, Hasselaar J, Centeno C. Clinical aspects of palliative sedation in prospective studies. A systematic review. JPSM 2020. (In Press Journal Pre-Proof). DOI:https://doi.org/10.1016/j.jpainsymman.2020.09.022
Arya A, Buchman S, Gagnon B, Downar J. Pandemic palliative care: beyond ventilators and saving lives. CMAJ 2020. doi: 10.1503/cmaj.200465 Astudillo W, Salinas A, Piolatti A, Bastos Z, Comba J, Mendinueta C, Fernández R, Zapata R, Díaz E, Ruiz R, De la Fuente C. Manejo Clínico de los Niños y Adolescentes ante la Pandemia de COVID-19. Revista El Dolor 73: 32-40; 2021 Astudillo W, Salinas A, Brandao Z, Carmona F, De Pablo A, Piolatti A, Comba J, Torres LM, Vázquez S, Gutiérrez A, Pérez-García M, Mendinueta C, Zamora A, Díaz E, Santamaría D, Fernández R, Grove X, De la Fuente C. Manejo clínico y paliativo del sufrimiento en la COVID-19. Revista El Dolor 71:10-21; 2019
Bajwah S, Wilcock A, Towers R, Costantini M, et al. Managing the supportive care needs of those affected by COVID-19. European Respiratory Journal 2020; DOI: 10.1183/13993003.00815-2020 Chochinov HM, Bolton J, Sareen J. Death, Dying, and Dignity in the Time of the COVID-19 Pandemic. JPM 2020; 23(10):1294-1295. https://doi.org/10.1089/jpm.2020.0406 Efstathiou N, Vanderspank-Wright B, Vandyk A, Al-Janabi M, Daham Z, Sarti A, Delaney JW, Downar J. Terminal withdrawal of mechanical ventilation in adult intensive care units: A systematic review and narrative synthesis of perceptions, experiences and practices. Palliative Medicine 2020; 34(9):1140-1164. https://doi.org/10.1177/0269216320935002 Ekberg K, Weinglass L, Ekberg S, Danby S, Herbert A. The pervasive relevance of COVID-19 within routine paediatric palliative care consultations during the pandemic: A conversation analytic study. PMJ 2020. https://doi.org/10.1177/0269216320950089 Heyland DK. Advance Care Planning (ACP) vs. Advance Serious Illness Preparations and Planning (ASIPP). Healthcare 2020, 8(3), 218; https://doi.org/10.3390/healthcare8030218
Leong, Ian Yi-Onn, Angel Onn-Kei Lee, Tzer Wee Ng, Lay Beng Lee, et al. The challenge of providing holistic care in a viral epidemic: opportunities for palliative care. Palliative Medicine 18, no. 1 (2004): 12-18 doi.org/10.1191/0269216304pm859oa Lerner ZI, Burke RV, McCall J, Leigh A, Glass M. A case report of COVID-19 in New Orleans, Louisiana: Highlighting the complexities of prognostication in a critically ill patient, Palliative Medicine Reports (2020) 1:1, 227–231, DOI: 10.1089/pmr.2020.0087. Masumi U, Martins R, Hendrie PC, McDonnell T, Crews JR, Wong TL, McCreery B et al. Managing Cancer Care During the COVID-19 Pandemic: Agility and Collaboration Toward a Common Goal. JNCCN 1, no. aop (2020): 1-4 DOI: https://doi.org/10.6004/jnccn.2020.7560 Potenza L, Luppi M, Efficace F, Bruera E, Bandieri E. COVID‐19 Pandemic and Cancer: The Importance of Early Palliative Care. The Oncologist 2020;25:1–3. https://doi.org/10.1002/onco.13587
10. Interdisciplinary
Cooper Z, Bernacki RE. To Face Coronavirus Disease 2019, Surgeons Must Embrace Palliative Care. JAMA Surg. 2020. doi:10.1001/jamasurg.2020.1698
Ferrell BR, Handzo G, Picchi T, Puchalski C, Rosa WE. The Urgency of Spiritual Care: COVID-19 and the Critical Need for Whole-Person Palliation. JPSM 2020; 60(3): E7-E11. DOI :https://doi.org/10.1016/j.jpainsymman.2020.06.034 O'Donnell MB, Adhikari EA, Rosenberg AR, Yi-Frazier JP. Promoting Resilience for Pediatric Health Care Workers in the Era of COVID-19: The PRISM at Work Program. JPM 2020. https://doi.org/10.1089/jpm.2020.0584 Rao A, Kelemen A. Lessons Learned from Caring for Patients with COVID-19 at the End of Life. JPM 2020;Volume XX (XX): 1-4. DOI: 10.1089/jpm.2020.0251
Rosa W, Gray T, Chow K, Davidson P, Dionne-Odom J.N, Karanja V, Khanyola J, Kpoeh JD, Lusaka J, Matula ST, Mazanec P, Moreland PJ, Pandey S, de Campos AP, Meghani SH. Recommendations to Leverage the Palliative Nursing Role During COVID-19 and Future Public Health Crises. Journal of Hospice & Palliative Nursing 2020. doi: 10.1097/NJH.0000000000000665
Rosa WE, Anderson E, Applebaum AJ, Ferrell BR, Kestenbaum A, Nelson JE. Coronavirus Disease 2019 as an Opportunity to Move toward Transdisciplinary Palliative Care. JPM 2020. DOI: 10.1089/jpm.2020.0306
Rosa WE, Meghani SH, Stone PW, Ferrell BR, Opportunities for Nursing Science to Advance Patient Care in the Time of COVID-19: A Palliative Care Perspective. J Nurs Scholarsh. 2020;52(4):341-343. doi:10.1111/jnu.12570
11. Issues Relevant to Low-Middle Income Countries
Abu-Odah, H., Molassiotis, A. & Liu, J. Challenges on the provision of palliative care for patients with cancer in low- and middle-income countries: a systematic review of reviews. BMC Palliat Care 19, 55 (2020). https://doi.org/10.1186/s12904-020-00558-5
Jennings N, Chambaere K, Deliens L, Cohen J. Trends in place of death in a small developing country: a population-level study using date certificate data. jech 2020. DOI: http://dx.doi.org/10.1136/jech-2019-213285
12. PC Response and Role during the Pandemic
Abbott J, Johnson D, Wynia M. Ensuring Adequate Palliative and Hospice Care During COVID-19 Surges. JAMA 2020. doi:10.1001/jama.2020.16843 Abu-Odah, H., Molassiotis, A. & Liu, J. Challenges on the provision of palliative care for patients with cancer in low- and middle-income countries: a systematic review of reviews. BMC Palliat Care 19, 55 (2020). https://doi.org/10.1186/s12904-020-00558-5
Arya A, Buchman S, Gagnon B, Downar J. Pandemic palliative care: beyond ventilators and saving lives. CMAJ 2020. doi: 10.1503/cmaj.200465 Astudillo W, Salinas A, Brandao Z, Carmona F, De Pablo A, Piolatti A, Comba J, Torres LM, Vázquez S, Gutiérrez A, Pérez-García M, Mendinueta C, Zamora A, Díaz E, Santamaría D, Fernández R, Grove X, De la Fuente C. Manejo clínico y paliativo del sufrimiento en la COVID-19. Revista El Dolor 71:10-21; 2019
Bajwah S, Wilcock A, Towers R, Costantini M, et al. Managing the supportive care needs of those affected by COVID-19. European Respiratory Journal 2020; DOI: 10.1183/13993003.00815-2020 Bone AE, Finucane AM, Leniz J, Higginson IJ, Sleeman KE. Changing patterns of mortality during the COVID-19 pandemic: Population-based modelling to understand palliative care implications. Palliative Medicine 2020; 34(9): 1193-1201. https://doi.org/10.1177/0269216320944810 Boufkhed S, Namisango E, Luyirika E, Sleeman KE, Costantini M, Peruselli C, Normand C, Higginson IJ, Harding R. Preparedness of African palliative care services to respond to the COVID-19 pandemic: A rapid assessment. JPSM 2020 (in press). DOI:https://doi.org/10.1016/j.jpainsymman.2020.09.018
Cooper Z, Bernacki RE. To Face Coronavirus Disease 2019, Surgeons Must Embrace Palliative Care. JAMA Surg. 2020. doi:10.1001/jamasurg.2020.1698
Costantini M, Sleeman KE, Peruselli C, Higginson IJ Response and role of palliative care during the COVID-19 pandemic: a national telephone survey of hospices in Italy. Palliative Medicine 2020. https://doi.org/10.1177/0269216320920780
Downar, J, Seccareccia, D. Palliating a pandemic: All patients must be cared for. JPSM, 2010; 39 (2), 291-295 DOI.org/10.1016/j.jpainsymman.2009.11.241 Emanuel L, Solomon S, Fitchett G, Chochinov H, Handzo G, Schoppee T, Wilkie D. Fostering Existential Maturity to Manage Terror in a Pandemic. Fostering Existential Maturity to Manage Terror in a Pandemic. JPM 2020; Volume XX(XX): 1-7. https://doi.org/10.1089/jpm.2020.0263 Etkind SN, Bone AE, Lovell N, Crippss RL, Harding R, Higginson IJ, Sleeman KE, - The role and response of palliative care and hospice services in epidemics and pandemics: a rapid review to inform practice during the COVID-19 pandemic. JPMS 2020.
Fausto J, Hirano L, Lam D, et al. Creating a Palliative Care Inpatient Response Plan for COVID19 – The UW Medicine Experience JPSM 2020; 60(1):E21-E26 DOI https://doi.org/10.1016/j.jpainsymman.2020.03.025
Ferguson L, Barham D. Palliative Care Pandemic Pack: a Specialist Palliative Care Service response to planning the COVID-19 pandemic. JPSM 2020; 60(1):E18-E20. DOI: https://doi.org/10.1016/j.jpainsymman.2020.03.026 Fiorentino M, Pentakota SR, Mosenthal AC, Glass NE. The Palliative Performance Scale predicts mortality in hospitalized patients with COVID-19. Palliative Medicine 2020; 34(9),1228-1234 https://doi.org/10.1177/0269216320940566
Fusi-Schmidhauser T, Preston N, Nikola K, Gamondi C. Conservative management of COVID-19 patients-emergency palliative care in action. JPSM 2020; 60(1):E27-E30. DOI: https://doi.org/10.1016/j.jpainsymman.2020.03.030
Hanson LC. We Will All Be Changed: Palliative Care Transformation in the Time of COVID-19. JPM 2020. https://doi.org/10.1089/jpm.2020.0446 Hetherington L, Johnston B, Kotronoulas G, Finlay F, Keeley P, McKeown A. COVID-19 and Hospital Palliative Care – A service evaluation exploring the symptoms and outcomes of 186 patients and the impact of the pandemic on specialist Hospital Palliative Care. Palliative Medicine 2020, Vol. 34(9) 1256–1262. https://doi.org/10.1177/0269216320949786
Heyland DK. Advance Care Planning (ACP) vs. Advance Serious Illness Preparations and Planning (ASIPP). Healthcare 2020, 8(3), 218; https://doi.org/10.3390/healthcare8030218
Krishna LKR, Neo HY, Chia EWY, Tay KT, Chan N, Neo PSH, Goh C, Peh TY, Chiam M, Low JAYH. The role of palliative medicine in ICU bed allocation in COVID-19: a joint position statement of the Singapore Hospice Council and the Chapter of Palliative Medicine Physicians. ABR 12, 205–211 (2020). https://doi.org/10.1007/s41649-020-00128-0
Leong, Ian Yi-Onn, Angel Onn-Kei Lee, Tzer Wee Ng, Lay Beng Lee, et al. The challenge of providing holistic care in a viral epidemic: opportunities for palliative care. Palliative Medicine 18, no. 1 (2004): 12-18 doi.org/10.1191/0269216304pm859oa O'Donnell MB, Adhikari EA, Rosenberg AR, Yi-Frazier JP. Promoting Resilience for Pediatric Health Care Workers in the Era of COVID-19: The PRISM at Work Program. JPM 2020. https://doi.org/10.1089/jpm.2020.0584 Oluyase AO, Hocaoglu M, Cripps RL , Maddocks M , Walshe C, Fraser LK, Preston N, Dunleavy L , Bradshaw A, Murtagh Fliss E.M., Bajwah S, Sleeman KE, Higginson IJ. The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall). JPSM 2021DOI:https://doi.org/10.1016/j.jpainsymman.2021.01.138 (in press) Patneaude A, Kett J. Cultural responsiveness and palliative care during the COVID-19 pandemic, Palliative Medicine Reports (2020) 1:1, 171–173, DOI: 10.1089/pmr.2020.0049
Perez-Moreno DP, López-Ramírez JH, Torres-Espinosa C. Cuidados paliativos para pacientes con infección por SARS-CoV-2/COVID-19; propuesta de un modelo de atención. Revista Mexicana de Anestesiología, 2020; 43 (4): 288-295. https://dx.doi.org/10.35366/94942 doi: 10.35366/94942
Powell VD, Silveira MJ. What Should Palliative Care's Response be to the COVID-19 Epidemic? JPSM 2020; 60(1)E1-E3. DOI: https://doi.org/10.1016/j.jpainsymman.2020.03.013
Radbruch L, Knaul FM, de Lima L, de Joncheere C, Bhadelia A. The key role of palliative care in response to the COVID-19 tsunami of suffering. The Lancet 2020. DOI: https://doi.org/10.1016/S0140-6736(20)30964-8 Roberts B, Wright SM, Christmas C, Robertson M, Wu DS. COVID-19 Pandemic Response: Development of Outpatient Palliative Care Toolkit Based on Narrative Communication. American Journal of Hospice & Palliative Medicine 2020;Volume: 37(11): 985-987. https://doi.org/10.1177/1049909120944868 Rosa W, Gray T, Chow K, Davidson P, Dionne-Odom J.N, Karanja V, Khanyola J, Kpoeh JD, Lusaka J, Matula ST, Mazanec P, Moreland PJ, Pandey S, de Campos AP, Meghani SH. Recommendations to Leverage the Palliative Nursing Role During COVID-19 and Future Public Health Crises. Journal of Hospice & Palliative Nursing 2020; 22(4):260-269. doi: 10.1097/NJH.0000000000000665
Rose C. Am I Part of the Cure or Am I Part of the Disease? Keeping Coronavirus Out When a Doctor Comes Home. NEJM 2020; 382:1684-1685 DOI: 10.1056/NEJMp2004768
Schoenherr LA, Cook A, Peck S, Humphreys J, Goto Y, Saks NT, Huddleston L, Elia G, Pantilat SZ. Proactive Identification of Palliative Care Needs among Patients with COVID-19 in the ICU. JPSM 2020. DOI: https://doi.org/10.1016/j.jpainsymman.2020.06.008
Stoltenberg M, Jacobsen J, Wilson E, Daubman B-R, Ritchie CS, Petrillo L, Jackson V, Aaronson EL. Emergency Department-Based Palliative Care during COVID. JPM 2020. https://doi.org/10.1089/jpm.2020.0285
Tran D, Lai S, Salah R, Wong A, Bryon J, McKenna M, Chan Y. Rapid De-Escalation and Triaging Patients in Community-Based Palliative Care. JPSM 2020; 60(1):E45-E47. DOI: https://doi.org/10.1016/j.jpainsymman.2020.03.040
Turner J, Hodgson LE, Leckie T, Eade L, Ford-Dunn S. A dual-centre observational review of hospital based palliative care in patients dying with COVID-19. JPSM 2020; 60(2):E75-E78. DOI: https://doi.org/10.1016/j.jpainsymman.2020.04.031
Wallace CL, Wladkowoski SP, Gibson A, White P. - Grief During the COVID-19 Pandemic: Considerations for Palliative Care Providers. JPSM 2020; 60(1):E70-E76. https://doi.org/10.1016/j.jpainsymman.2020.04.012
13. Psychological/Emotional/Spiritual Issues
Curley, M.A.Q., Broden, E.G. & Meyer, E.C. Alone, the hardest part. Intensive Care Med (2020). https://doi.org/10.1007/s00134-020-06145-9
Ferrell BR, Handzo G, Picchi T, Puchalski C, Rosa WE. The Urgency of Spiritual Care: COVID-19 and the Critical Need for Whole-Person Palliation. JPSM 2020; 60(3):E7-E11. DOI: https://doi.org/10.1016/j.jpainsymman.2020.06.034
Norris J. How Hospitals, Hospices & Care facilities can use Skype to reduce loneliness during the Coronavirus (COVID-19) pandemic. BMJSPCblog 2020.03.15
Rosa WE, Ferrell BR, Applebaum AJ. The alleviation of suffering during the COVID-19 pandemic. Palliative Care and Supportive Care. Palliative and Supportive Care 2020. DOI: https://doi.org/10.1017/S1478951520000462
Wu Y, Wang J, Luo C, Hu S, Lin X, Anderson AE, Bruera E, Yang X, Wei S, Qian Y. A comparison of burnout frequency among oncology physicians and nurses working on the front lines and usual wards during the COVID-19 epidemic in Wuhan, China. JPSM 2020; 60(1):E60-E65. https://doi.org/10.1016/j.jpainsymman.2020.04.008
15. Symptom Management
British Medical Journal - Managing COVID-19 Symptoms(including at the end of life) in the community: summary of NICE guidelines. BMJ 2020; 369 doi: https://doi.org/10.1136/bmj.m1461 (Published 20 April 2020)
Hetherington L, Johnston B, Kotronoulas G, Finlay F, Keeley P, McKeown A. COVID-19 and Hospital Palliative Care – A service evaluation exploring the symptoms and outcomes of 186 patients and the impact of the pandemic on specialist Hospital Palliative Care. Palliative Medicine 2020, Vol. 34(9) 1256–1262. https://doi.org/10.1177/0269216320949786
Lovell N, Maddocks M, Etkind SN, Taylor K, Carey I, Vora V, Marsh L, Higginson IJ, Prentice W, Edmonds P, Sleeman KE. Characteristics, symptom management and outcomes of 101 patients with COVID-19 referred for hospital palliative care. JPSM 2020. DOI: https://doi.org/10.1016/j.jpainsymman.2020.04.015 Schoenherr LA, Cook A, Peck S, Humphreys J, Goto Y, Saks NT, Huddleston L, Elia G, Pantilat SZ. Proactive Identification of Palliative Care Needs among Patients with COVID-19 in the ICU. JPSM 2020. DOI: https://doi.org/10.1016/j.jpainsymman.2020.06.008 Strang P, Bergström J, Lundström S. Symptom Relief Is Possible in Elderly Dying COVID-19 Patients: A National Register Study. JPM 2020;Volume XX (XX):1-6. DOI: 10.1089/jpm.2020.0249 Ting R, Edmonds P, Higginson IJ, Sleeman KE. Palliative care for patients with severe covid-19. BMJ 2020; 370 doi: https://doi.org/10.1136/bmj.m2710 (Published 14 July 2020)
16. Telemedicine
Hollander JE, Carr BG. Virtually Perfect? Telemedicine for Covid-19. NEJM 2020 (in press) DOI: 10.1056/NEJMp2003539
Wang Samuel S.Y., Teo Wendy Z.W., Teo Winnie Z.Y., Chai Yong Woon. Virtual Reality as a Bridge in Palliative Care during COVID-19. JPM 2020 https://doi.org/10.1089/jpm.2020.0212
17. Universal Health Coverage
Rosa WE, Davidson PM. Nursing and Health Policy Perspectives. Coronavirus disease 2019 (COVID-19): strengthening our resolve to achieve universal palliative care. International Nursing Review (INR) 2020
18. Vulnerable Groups
Ekberg K, Weinglass L, Ekberg S, Danby S, Herbert A. The pervasive relevance of COVID-19 within routine paediatric palliative care consultations during the pandemic: A conversation analytic study. PMJ 2020. https://doi.org/10.1177/0269216320950089 Escobio F, Nouvet E. Ebola virus disease and palliative care in humanitarian crises. Lancet 2019;393:1100. https://doi.org/10.1016/S0140-6736(19)30295-8
Goldenberg DL. COVID-19: What It Means for Diabetics, The Obese and Those with Other Immune Diseases. Practical Pain Management (PPM) April 2020
Kunz R, Minder M. COVID-19 Pandemic: palliative care for elderly and frail patients at home and in residential and nursing homes. Swiss Med Wkly 2020. DOI: https://doi.org/10.4414/smw.2020.20235
Nouvet, Elysée, Mollie Sivaram, Kevin Bezanson, Gautham Krishnaraj, Matthew Hunt, Sonya de Laat, Stephanie Sanger, Laura Banfield, Pedro Favila Escobio Rodriguez, and Lisa J. Schwartz. Palliative care in humanitarian crises: a review of the literature. Journal of International Humanitarian Action 3, 1(2018):5. doi.org/10.1186/s41018-018-0033-8
Rosa WE, Shook A, Acquaviva KD. LGBTQ+ Inclusive Palliative Care in the Context of COVID-19: Pragmatic Recommendations for Clinicians. JPSM 2020. https://doi.org/10.1016/j.jpainsymman.2020.04.155
Waldman E, Glass M (eds) - A Field Manual for Palliative Care in Humanitarian Crises (Book). Oxford Medicine Online 2019 DOI: 10.1093/med/9780190066529.001.0001 (open access)
Weaver MS, Wiener L. Applying Palliative Care Principles to Communicate with Children about COVID-19. JPSM 2020; 60(1):E8-E11. https://doi.org/10.1016/j.jpainsymman.2020.03.020
Wynne KJ, Petrova M, Coghlan R. Dying individuals and suffering populations: applying a population-level bioethics lens to palliative care in humanitarian contexts: before, during and after the COVID-19 pandemic. BJM 2020. http://dx.doi.org/10.1136/medethics-2019-105943
Do you have or know of any resources or publications that are not included?
Contact Us
This website is managed by the IAHPC and is offered to the global palliative care community as a common shared space to do global advocacy for palliative care. For more information contact the IAHPC